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21 June, 2018, 06:33:51 pm
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WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


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 1 
 on: 17 June, 2018, 03:43:03 pm 
Started by Amb - Last post by Bernadette
Hi again!

Vitamin B12 and B6 are required for nerve regeneration.

Foods high in Vitamin B12 are liver, sardines, mackerel, lamb and salmon.

Foods high in Vitamin B6 are pork. poultry – such as chicken or turkey -  and fish.

There is some evidence to show that acetyl-l-carnitine enhances myelination too, but I am pretty sure it caused me to start an under eye twitch - which later went away. Still get it occasionally if I have looked at the computer too much - and caffeine makes it much worse.  Acetyl-l-carnitine did produce some improvement, as well,  in my case. My eye came back to a normal shape quite quickly after taking it.

I also ate lots of berries. They are supposed to protect against nerve damage, but might also enhance nerve regeneration https://www.ncbi.nlm.nih.gov/pubmed/25317174

The point being that you have to give your body the building blocks to be able to repair the damage that has occurred.

Hope you are seeing a little improvement now!


 2 
 on: 15 June, 2018, 08:26:06 pm 
Started by Amb - Last post by Mrkswfe
Thank you  Smiley

 3 
 on: 15 June, 2018, 07:55:11 pm 
Started by Amb - Last post by Bernadette
Hi!

Yes I know - Bell's palsy is an awful condition - very difficult to put up with. Don't get too despondent though at only 5 weeks in!

I looked for the information about electrical stimulation and facial exercises on NICE (National Institute of Clinical Evidence) - generally followed by NHS in UK. This is what it said "There is no evidence to suggest that either exercises or electrical stimulation is beneficial to patients with acute Bells' Palsy" https://bestbets.org/bets/bet.php?id=129

And:

"There is no high quality evidence to support significant benefit or harm from any physical therapy for idiopathic facial paralysis. There is low quality evidence that tailored facial exercises can help to improve facial function, mainly for people with moderate paralysis and chronic cases. There is low quality evidence that facial exercise reduces sequelae in acute cases. The suggested effects of tailored facial exercises need to be confirmed with good quality randomised controlled trials."
http://cochranelibrary-wiley.com/doi/10.1002/14651858.CD006283.pub3/abstract;jsessionid=1E85F48A581C0326E573A7744315F4A9.f01t04

Try eating a nutritious diet (high in protein and vitamins, and low in sugar) and go for regular walks.

Your face will improve.

 4 
 on: 15 June, 2018, 07:20:20 pm 
Started by Amb - Last post by Mrkswfe
Hello thank you for your reply,  I just left my physical therapy and my  dr sent her a script for e stim it wouldn't move my face at all , then we decided not to do it anymore and just do the facial stretching and exercise,   Cry , I'm getting so depressed I don't like going out in public at all people stare , talking is hard I get so mad when I cant say my words right .

 5 
 on: 15 June, 2018, 06:30:02 pm 
Started by pete256 - Last post by Bernadette
Hi Pete,

Sorry to hear about the after-effects of your Bell's palsy. Your facial nerve seems hyperresponsive?

I was lucky and had a good quick recovery, but sometimes get a twitch in my eye that doesn't go away. Staying off the computer helps the twitch. Caffeine definitely makes it much worse. Try avoiding caffeine?

All the best!

 6 
 on: 15 June, 2018, 06:21:20 pm 
Started by Amb - Last post by Bernadette
Hi!

So sorry to hear of your anxiety.

5 weeks in is still early days - many people take longer to start recovery.

If you are totally paralysed it would take longer than 5 weeks.

As you no doubt know, they carry out the electromyography to see if you are a candidate for the facial nerve decompression surgery. They will try to assess how much you will recover naturally without intervention.

According to the paper I have read (link below) even without treatment, "facial function is completely
restored in approximately 70% of Bell’s palsy patients with complete paralysis within 6 months"

In the same paper, the authors made no recommendation with regards to facial nerve decompression surgery. No recommendation means that there was  both a lack of pertinent evidence and an unclear balance between benefits and harms. There are some details on page 17 http://journals.sagepub.com/doi/pdf/10.1177/0194599813505967

Wishing you the very best of luck!


 7 
 on: 15 June, 2018, 03:43:01 am 
Started by pete256 - Last post by pete256
hi, been a long time since iv been on this forum. id like to start by saying a massive thank you!!!! with something that not a lot of people understand this place was so helpful and full of supportive people really helped me a lot Smiley
Ok so its been about 5 years maybe since i first got bells palsy and lucky for me after maybe 10 months i was back to maybe 90% movement now think im 100%
i do however have a few issues, when i eat or purse my lips my eye will shut thats annoying but worse than that if i laugh to much or brush my teeth for to long i get excruciatingly painful cramps in my face, and have a twitch in my eye that wont go.
my question would be has anyone else experienced these and if so anything to help?   


 8 
 on: 15 June, 2018, 02:19:24 am 
Started by Amb - Last post by Mrkswfe
Hello I'm 5 weeks in dry eye, left side totally paralyzed getting scared,  so my emg Monday 6/18/18 I go 7/23/18 to a specialist to see about facial nerve decompression surgery,  my vision is getting really bad in that eye , so hard to eat , terrible pain in the back of my head , done steroids,  aclovair nothing helps

 9 
 on: 12 June, 2018, 05:42:41 pm 
Started by PK_Lemon - Last post by Bernadette
Hi!

According to NiICE (National Institute for Health and Care  Excellence) there is no evidence to support physical therapy for Bell's palsy https://cks.nice.org.uk/bells-palsy#!scenario

But perhaps someone who has tried it will be able to give you a different answer.


 10 
 on: 12 June, 2018, 04:08:33 pm 
Started by DaveEamens630 - Last post by Bernadette
Hi Dave,

Sorry that you are feeling unwell.

50mg per day for 10 days is one option as a dosing regime for Bell's palsy. The suggestion is to divide the 50mg into 2 x 25mg doses.

I was told to follow the other suggested option i.e 60 mg daily for five days followed by a daily reduction in dose of 10 mg (for a total treatment time of 10 days) The hospital doctor who suggested this regime to me seemed to think tapering off was important - more important than the total dose taken.

You can see the NICE recommendations here https://cks.nice.org.uk/bells-palsy#!scenario

I actually took the first 60mg, had a bad reaction to it including moving from partial paralysis to more severe paralysis, and so I  tapered off from Day 2 to Day 10 with the result  that I took a greatly reduced dose. On Day 10 I started to experience severe pain and my recovery started.

I can't find much on adverse effects of suddenly stopping prednisolone. There is this paper which describes respiratory distress  in someone with a pre-existing lung condition, so I think not very relevant really https://www.ncbi.nlm.nih.gov/pubmed/16131795

Hope you feel better soon and get some recovery too!

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