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24 March, 2017, 05:49:36 pm
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WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


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 1 
 on: 23 March, 2017, 01:21:02 pm 
Started by jimjonson - Last post by DebbieL
I'm sorry you're having to deal with this.  But what you have does not sound at all like BP.  You have nerve damage, but your symptoms are nothing like a traditional BP.  Have you had an MRI?  Can you get a second opinion on what has caused your nerve damage? There are many possible causes of nerve damage.  Not everything is BP

 2 
 on: 23 March, 2017, 01:18:49 pm 
Started by louisey07 - Last post by DebbieL
Only your doctor can give you a guesstimate on when it will wear off.  Botox isn't perfect.  I know several people who had it only once, with a really bad reaction.  Others have had it for years successfully, only to have their face paralyzed again due to Botox.  If you read the possible side effects and negatives, you might not want to do that again.  I'm really shocked at how many people have Botox as if it was just a minor procedure.  It isn't, and it should be done by a doctor, not a nurse or technician.  Prayers and high hopes that it wears off before your wedding.  Happy wedding day!

 3 
 on: 22 March, 2017, 07:39:03 pm 
Started by louisey07 - Last post by louisey07
I have recently had my first botox treatment for synkenisis in my left eye.
It has definitely alleviated my synkenisis but it has also frozen the left side of mouth meaning that i am now speaking out of the right side and cannot smile!
I had botox because i get married in 2 months and didn't want to hate every single photograph of me as my left eye closed when i smiled!
However, now i can't smile at all on one side of my face!
I feel like I have Bells palsy all over again!!!

Does anyone know if this will wear off at all before my wedding?

Thanks for reading
x

 4 
 on: 21 March, 2017, 10:22:05 pm 
Started by jimjonson - Last post by jimjonson
Hi all,

So Iíve been scouring the internet for some first hand experience for what Iíve been going through, but have come up empty handed. Perhaps someone here has/is going through what I am going through.

I noticed my Bells Palsy about a month after it started. In the middle November (2016), I noticed my right eye was not fully blinking while staring in a mirror. Looking back on pictures and videos, I determined that this had started sometime in the middle of October. No one had noticed it before, since it was really subtle Ė the right eyelid would flicker, but not fully blink. When I would use mouth wash, I did notice a little bit would spurt out of the right side of my mouth as well. However there was no real ďdroopĒ that others with BP usually have. My smile was still intact, and didnít seem like my mouth too effected.

After seeing a doctor, and multiple specialists, my BP had been confirmed. Unfortunately itís been approx. 6 months, and no sign of improvements have shown. My right eye does not blink, and my mouth has worsened over the months. I am having a tough time pronouncing words, my smile is one sided, and it has generally sunk my self confidence.

After getting some testing done with a neuromuscular specialist, it was determined that I have a severe case of BP. It seems as if my nerves have gone through some serious damage. There is very little communication between the nerve and muscles near the mouth area. The doctor was unable to see any communication between the muscle and nerve near my eye. The doctor said my mouth would never fully recover.

Just wanted to vent somewhat, as I havenít been able to speak with anyone going through what I am. And also wanted to see if anyone has gone through what I have been through. If anyone has gone through or is going through what I am, please feel free to reach out to me. Would love to talk and share some stories  Smiley

 5 
 on: 18 March, 2017, 02:22:02 pm 
Started by suzukibruce - Last post by DebbieL
Great eye patch!  Best of luck for a good recovery.  Good that your doctor gave you pred and antivirals.  You might have side effects from the Lyrica.  Not everyone does of course, but I'd definitely read the possible side effects and be aware just in case.  Your attitude is great, and may well help make your recovery easier than someone who is extremely stressed.

Hang in there!  This too shall pass!

 6 
 on: 18 March, 2017, 01:48:12 am 
Started by suzukibruce - Last post by suzukibruce
so i woke up 2 saturdays ago and realized something was wrong with my face, of course like most of us, i thought i had a stroke. well is wasnt, its bell's palsy. im a happy go lucky kind of guy and roll with the punches pretty well so i have been making light of the whole situation but its starting to get annoying... my right eye will not blink or close, even though i have no trouble opening it, i cant close it. i have the "i feel like someone punched me in the face" feeling and of course the facial paralysis. doc put me on prednisone, acyclovir and lyrica. i have also been taking b complex and l-lisine because i read somewhere that it helps (b.s.) so im going on week 3 here and have had zero improvement. i'm taping my eye closed since it is soooo much easier than putting drops in it every 30 seconds... anway for right now i'm trying to just have fun and cope with it...


 7 
 on: 17 March, 2017, 06:17:00 pm 
Started by Fatboy - Last post by Bernadette
Hi!

Hope your visit to the doctor went well.

If diabetes is not responsible for the hand and feet sensations, then the other possibility is that the damage to the facial nerve caused changes in the central nervous system which resulted in the nerves in your hands and feet becoming hyperexcitable now.  I am experiencing the same thing.

Best wishes to you!

 8 
 on: 17 March, 2017, 10:17:55 am 
Started by Andy23 - Last post by mags1
hi chloe

I have been diagnosed with mrs now for about 8 years and would be happy to chat to you

mags

 9 
 on: 16 March, 2017, 04:50:40 pm 
Started by Fatboy - Last post by Fatboy
Many thanks for the replies.
It is not diabetes as I have had that checked often.

I am off to Docs tomorrow so will ask about these suggestions.

 10 
 on: 16 March, 2017, 09:34:53 am 
Started by Fatboy - Last post by Bernadette
Hi!

The facial nerve does supply the muscles in the neck - the platysma muscle - https://en.wikipedia.org/wiki/Platysma_muscle

You sound as though you are having some kind of spasm on the left side. Hemifacial spasm can sometimes follow Bell's palsy - the facial nerve may be more excitable following the condition. This type of spasm may take different forms.

The treatment for hemifacial spasm is usually Botox.

The "cracking" in your neck  would probably be caused by  inflammation.

The weird feelings in your hands and feet could be paresthesia. Can be linked sometimes with diabetes.

All the best!

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