Welcome, Guest. Please login or register.
Did you miss your activation email?
31 October, 2014, 08:13:35 am
Home Help Search Login Register
News:

WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


+  Bells Palsy Support Forums
|-+  General
| |-+  GENERAL DISCUSSION - Open To All
| | |-+  Facial therapist uk- Ideas to get a referral please!!!
« previous next »
Pages: [1] Print
Author Topic: Facial therapist uk- Ideas to get a referral please!!!  (Read 1660 times)
sonbee
Guest
« on: 18 January, 2011, 08:25:11 pm »

 on friday afternoon I emailed Lorraine Chapman @ southhampton hospital to enquire how to get an appointment with her.
 She replied first thing on monday morning saying to try asking my GP to refer me to her and that it was worth a try!!
SO!!!  I would like ideas to convince my GP why i should be seeing her and not just any physio therapist please!!!
The more reasons  im armed with before i go in there the better my chances of getting the referral i need!!!!!
ttfn
sonia x
Logged
pj
Guest
« Reply #1 on: 18 January, 2011, 09:18:39 pm »

Hi sonbee,
Good idea I reckon to get some expert advice,  and  to get to a specialist team now to maximise the movement that you have.
It's going to take some convincing to get a gp to refer out of district and not to their local pet physio that they have a cosy deal with. Go armed with info off this site, stressing how important it is to see a team that is up to date on current treatments. Show them you have researched it and know who you want to see and if they are hesitant ask why it should be a post code lottery and for you to be penalised for not necessarily living in the health district served by that hospital. Show that you know your stuff, be passionate about it and knowledgeable. The average physio cant carry out an EMG test which measures the amount of nerve impulse that is getting through to individual muscles--you want to have that done, because then the exercises can be aimed at the muscles that have impulse but are hampered by other tight constricted muscles. A specialist facialpalsy team has to be better than a physio that generally sees strains and aches and sports injuries..they are the specialists. One of the treeatments to relax contracted muscles is medicinal botox, aimed very specifically at a spasmed muscle...this then allows the other muscles held back by this one to have a chance to move and get strong again...a local physio has no ability to do this and it is a recognised treatment for bells palsy sufferers... If one side of your face is now tight and pulling up, or the lip is pulling up, then some muscles are likely to be tight and contracted, show the gp that ,tell them its got to be dealt with, but the face is not the usual thing a physio works on and you need to see a team that just deals with this sort of thing.
Another thing. If absolutely no luck with a referral...,The east grinstead hospital is just over an hour further along the motorway, ?150 will get you a 2 hr private assessment and exercises with the clinic there..(Evaluation of recovery, Exercises, EMG test, photos, measurements, info) No wait .Availability of private appointments,  tues and weds after 4pm.   Follow up a few weeks later,?90.   I know its not free,and its not necessarily feasible morally or financially to pay but its the best ?150 I've ever spent and in 2 weeks I can honestly say I am feeling in control and can see real progress and so can others. I have regained a smile that I can live with, not perfect, but so much better and for the first time since last May I feel myself returning
All the very best sonbee, good luck, be strong, knowledgeable, determined , insistent and give it your best shot.
Pj

Logged
possduibleg
Newbie
*
Posts: 0



« Reply #2 on: 18 January, 2011, 09:58:17 pm »

Hi sonbee,

It might also be worth phoning round a few local physio departments and even private physio practices to ask if they have anyone who specialises in the treatment of facial palsy, the answer is most likely going to be no, but then you can tell your GP you've asked around and there are no local specialists. Also under choose and book, patients have a legal right to have it explained to them that they can be referred to a clinician and facility of their choice no matter if its out of area or not. This isn't always properly explained to patients, and it may take longer as they argue over funding (especially with the current situation regarding PCTs) but you are legally entitled to be referred to who you want to see.
Lola
Logged
possduibleg
Newbie
*
Posts: 0



« Reply #3 on: 18 January, 2011, 10:00:52 pm »

http://www.chooseandbook.nhs.uk/patients/whatiscab

That is link to Choose and Book information.
Logged
sonbee
Guest
« Reply #4 on: 23 January, 2011, 10:46:16 pm »

Brilliant, Thank you so much for your excellent excellent advice!! much details to absorb before tuesday, im going to the best doctor at my practice, ive never heard anybody say a bad word about him which i think speaks volumes. Hopefully he will be easily persuaded. Im practicing looking forlorn and woebegone as a back-up plan. Tears wont work with him, he takes them in his stride, unlike other doctors who suddenly get a wild look about the eyes and panicking!!!!! lolol!!
i will let you know how i fair as soon as i return!!!
Logged
sonbee
Guest
« Reply #5 on: 25 January, 2011, 08:33:38 pm »

Hello,
As promised i have returned to let you know what happened.
Unfortunately i was unsuccessful  Sad.
But not due to my GP being reluctant... It was down to funding... In fact he tried very hard to find a way of doing it! He told me the process involved in referring out of area; i would need to contact Lorraine and find out how much it would cost to see her,and how long she thinks my treatment would take. Then armed with this information my GP needs to write to the PCT (primary care trust), who would then hold a big commitee meeting to decide whether or not my case deserved funding. Although he was very willing to do this for me, it seems like a process that would take a long time with no guaranteed results, which would leave me worse off if they refused funding. He then offered an appointment with local physio who can make a tertiary referral  if they decide they cant help me make a full recovery. I decided this is they way forward and i can then plead with physio for a  referral. Ive got a letter to take with me to the physio department  at local hospital in the morning Smiley
On the letter it has a section listing the aim of treatment and my GP has written 'To restore her beauty!!!' which made us both have a giggle.
I dont feel ive been let down, ive taken the best option available at present. I still havent ruled out going private, if i feel the physio arent taking my recovery seriously i will certainly take that route. Im early enough in my recovery to have the option without it having a dramatic effect on the end result.
I hope that by posting  this other people are more aware of how to go about getting the help they want as not many people are as lucky as me to have a helpful GP.
take care stay positive
sonia x
 
Logged
pj
Guest
« Reply #6 on: 25 January, 2011, 08:49:32 pm »

Hope it goes ok at the physio referral. As I am sure you will, ask them how many patients they have treated with facial palsy and try and sound out whether they have any experience or specialist knowledge about it. I can only say that the physio I saw before going to the facial palsy unit was very honest and that as soon as I started getting decent movement ( I was really seeing her for balance issues and a little general facial toning) and the muscles started going hypertonic, she said she was backing off and felt I should see a specialist as she was out of her depth. I admired her honesty as she was then going to miss out as I was seeing her privately through insurance.
Re pricing generally for a private consultation at QVH East grinstead, I've put the prices I am paying in my previous post- the physio reckons 3 apps minimum. ?150 first assessment, then 2 X ?90.
good luck tomorrow
Pj
Logged
jerseygirl
Guest
« Reply #7 on: 25 January, 2011, 08:53:19 pm »

Hi Sonia
I am really sorry that you didn't get the referral you wanted but at least your GP is very understanding and explained the situation and then managed to find another way for you to hopefully get the help you need.  I am nearly 7 months and feel I am at the stage of needing to see somebody who understands about facial palsy.  Unfortunately this will have to wait for a little while until I sort out my other health issues.  Let us know how you get on at the hospital, hopefully they will help you to 'restore your beauty' but if not, and you are able to pay, go down the private route.  Best of luck
Logged
debbie1056
Forum God
*****
Posts: 1390


Fully recovered


« Reply #8 on: 25 January, 2011, 08:59:16 pm »

Hi
Only bit of advice l can give you is when you see a physio ask the question "do you have any expertise in facial palsy" if they dont then l would asked to be referred to another physio that does have the expertise.  The first one l went to didnt have a clue when l asked the question so l walked out and in the end paid to see one myself that did understand it.
Regards
Debbie
Logged
sonbee
Guest
« Reply #9 on: 25 January, 2011, 09:58:06 pm »

absolutely!!
I intend to get the best possible treatment (hopefully via the nhs) and wont be fobbed off!! im sure that no-one wants a disasterous result on their records, and will gladly refer me on to someone who knows what they are doing!!
Logged
Pages: [1] Print 
« previous next »
Jump to:  


Login with username, password and session length

Powered by MySQL Powered by PHP Powered by SMF 1.1.19 | SMF © 2013, Simple Machines Valid XHTML 1.0! Valid CSS!