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| | |-+  Bells palsy pain!!!
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Author Topic: Bells palsy pain!!!  (Read 930 times)
Ronnie
Guest
« on: 21 June, 2011, 11:06:03 am »

Hi all, I just wanted to ask if anyone has the same symptoms as me. I had bells palsy for over a year before it started to get better, that was three years ago. I have a residual weakening of the lhs of my face which is fine, what i am struggling with is the perpetual pain above my left eye from the nerve damage. According to my doc, there is no pain associated with BP and I need a shrink. I have heard that botox can help with this, does anyone have any advice for me. I tend to walk about with a hot cloth or hot water bottle when it is bad. It's is hot and burnie feeling and strained with paracetamol and ibuprofen offering no relief. Many thanks ronnie
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pj
Guest
« Reply #1 on: 21 June, 2011, 03:46:33 pm »

Hi ronnie
The pain sounds unpleasant to have to deal with in the long term. Nice caring doc to say you need a shrink!
Is it a regular GP that you are seeing, or a specialist consultant in nerve damage or BP. I ask this because the average GP is no expert on this illness and its effects. I would have thought it would be worth having tests to see what nerve impulse you got and where in that area. I have regular botox but for the synkinesis and chin dimpling, not pain, but I would have thought there was expert advice to be had from someone specialising in nerves and pain management.
Good luck with it
Pj
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taid49
Guest
« Reply #2 on: 22 June, 2011, 07:40:34 pm »

yes i agree with PJ, Ronnie, you should not have to continue suffering with this pain go back and demand to see someone who can give you advise and treatment to help relieve your pain, a good GP will understand and should be eager to help you.  So book an appointment with your GP tomo, so you can have the care you deserve.

                                           Good Luck

                                                     John
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Ronnie
Guest
« Reply #3 on: 23 June, 2011, 04:05:42 pm »

Thanks guys, apart from my initial diagnosis, some antibiotic and steroids, I never had much contact with the doc. They refused to recognise that there was nerve pain. I took syndol for ages trying to get relief. I finally asked for a referral and ended up seeing a dermatologist- this is the guy who said I should see a shrink. I will go back to my doc and see if I can get referred to a nerve specialist. I would quite happily pay to go private. It's been a long time with no change and I feel a bit of a moaner.
Thanks for the support.
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DebbieL
Guest
« Reply #4 on: 23 June, 2011, 04:59:52 pm »

I'm sorry to hear you're still experiencing pain.  I am too, since 1984.  I've tried a lot of doctors, a lot of drugs and treatments, and for me, what works best is muscle relaxants.  I take Robaxin 750 as needed for pain.  I usually only take one or two a day, but the prescription is for up to 3 a day.  Again, I only know what works for me, and different things work for different people, but it's an option you could mention to your doctor.  I was originally prescribed it by my GP back in 1984.  I didn't take it for years, as my doctor retired and other doctors weren't willing to prescribe it, thinking BP didn't cause pain like that.  Grrrrr.  But in Dec I went to a neurologist for possible MS diagnosis (nope, don't have it!) and she prescribed Robaxin.  My GP now prescribes it, actually raised the dosage from 500mg to 750mg, because she feels the pain is caused by muscle spasms and tightness, and that it helps.  She's right, it helps, along with occasional acupuncture and osteopathic manipulation and massage.  Best of luck.  It's horrid when doctors don't acknowledge that the pain is real.  It IS real, and sometimes pretty darned awful.  I feel your pain, seriously.
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