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18 October, 2017, 08:38:34 am
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WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


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Author Topic: Living with Bell's Palsy  (Read 3084 times)
Biscotte
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Posts: 1


« on: 12 June, 2015, 12:32:50 am »

I'm close to my two years with Bells's Palsy Maybe 72% recovery . I have PT GETTING BOTOX ange a great support team.. My question today ? Can I improve my condition ?
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iudita
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Posts: 10


« Reply #1 on: 02 March, 2017, 02:59:21 pm »

Take heart! I have had BP for 22 months. Mine has been a slow incremental but steady recovery and it has taken a lot of patience. I am at about 80% recovery. I am a bodyworker so i take time every day to massage and slowly and gently work the muscles involved as best as I can. I take encouragement by noticing the smallest changes and am hoping for a full recovery in time. I limit stress in my life to a minimum, and since my condition also came with many weird symptoms, I ride them out by telling myself it is all part of my healing. The weird symptoms and fatigue has gone away as of the last couple of months.  I now am seeing a few BP sufferers in my office in Solon, Ohio and trying to do for them what I wish could have been done for me. I am happy to share as much encouragement and support as I can with anyone else. This is a rare and very little known condition it seems. feel free to contact me at iuditaharlan@gmail.com Hang in there it keeps getting better. Nerves take a long time to regenerate i am told. How are you these days?
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Eddie USA
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Posts: 10


« Reply #2 on: 18 May, 2017, 03:14:51 am »

iudita - THANK YOU!

I just joined because at 7 months going on 8, I thought my BP would never improve and thought I could get answers here.  I now have hope it will get better based on your progress.

My Story - I had a very sharp pain in my left temple several times in prior weeks to my BP appearing.  My left eye had a dry spot on it too before the BP actually set in.  When it did come, I thought i was having a stroke.  Went to ER and scan showed nothing and in fact the BP went away briefly.  A day or two later came back and stayed.  

Like many who researched the web about BP, I thought a few weeks would go by and it would be gone.  No deal - I went to a Neurologist and had a die injected MRI with nothing showing.  Went to an ENT and told to wait it out. Went to my eye Dr and they just have me keeping ointment in my eye.

So here I am ready to just give up and I see your post along with others who are taking the long road with me so again, thank you for posting since I now feel I am not at the end of that road with no recovery possible...

Currently my smile is crooked, i find it hard to talk, eat and have bouts of tooth aches and other pain on that side of my face - but i have to say, either I am dealing better with it months later or I am actually getting better because even though the symptoms are still severe, they appear less problematic now than when it started.

One final note, I actually have better days than others so not sure if that is common or not.

« Last Edit: 18 May, 2017, 03:18:43 am by Eddie USA » Logged
Nikki
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Posts: 1



« Reply #3 on: 26 May, 2017, 12:02:53 am »

Hi. I had Bell's Palsy on my right side 3 years ago. It took over a year to start to look normal again. I did not get to the doctor as soon as I should have so perhaps too late for medication to help. I still was not able to curl my tongue or make certain facial expressions that I had been able to before. I still could not fill my right cheek with air. 2 days ago at work I recognized the way sounds were suddenly loud and booming...as had been the case with previous Bell's Palsy. My face showed no signs. It was enough to tell my boss I was concerned. The next day my eye didn't blink as well as it should on my left side this time. I decided to take a nap, maybe I was tired. When I woke up symptoms were worse, but not pronounced. I went straight to Emergency room, got predniSone and Acyclovir and took some immediately. Today...symptoms are worse but not yet as bad as first time. I can still curl up a tiny smile on the left and my laugh line is there. My eye won't close and tears all the time. We shall see how fast it goes away this time. What is good though is I got through it fine before, I will get through it again. The key is to find the humor in it. I go back to work tomorrow. Wish me luck! Cool
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iudita
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Posts: 10


« Reply #4 on: 07 June, 2017, 11:33:33 pm »

I am so grateful that after 25 months I am still slowly, incrementally improving. My energy as it used to be just came back two months ago, I feel well most every day, for a long time I felt unwell and had all kind of strange symptoms besides the facial stuff. I tell myself every day that I am healing, visualize healing energy moving through me, strengthen gently the facial nerves that are weaker and keep my stress to a minimum. I am learning that healing can take place and continue over many many months. nerves are slow to recover and regenerate and reconnect. Take heart and know you are on the road to recovery. I am a Body Mind Integration specialist and am available to support and help those in need the way I wish i could have been supported. My website is www.iudita.com and I am located on the outskirts of Cleveland, Ohio in Solon.
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