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21 May, 2018, 06:15:09 am
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| | |-+  Newly diagnosed, extremely scared
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Author Topic: Newly diagnosed, extremely scared  (Read 609 times)
Kcaruso21
Newbie
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Posts: 3


« on: 14 January, 2018, 02:05:12 am »

I was diagnosed with Bellís palsy on December 27. I had an MRI, which shows no underlying cause of this attack. As many of us have been told, there is no way for our doctors to tell us exactly what happened. I am trying very hard to remain positive. I have moderate facial paralysis- not total. The biggest problem I am finding for myself is the intense unbearable ear ringing or tinnitus. This did not start right away, but about one week after the initial onset. It is affecting me in many ways, and making my hearing extremely sensitive. Sometimes it is so loud itís deafening for moments at a time. I go to sleep with it and wake up with it. I would love for some people to tell me that this will go away in time as I recover. Trying to trust my bodyís ability to heal. I am 29 and in good health otherwise. If anyone out there has recovered from this ear ringing or at least gotten used to it or had it subside, please let me know so I can have some hope. Thank you
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Bernadette
Forum God
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Posts: 555


« Reply #1 on: 14 January, 2018, 08:27:52 am »

Hi!

So sorry to hear about the tinnitus. It does occur with Bell's palsy as the eight cranial nerve (vestibulo-cochlear nerve) can be affected as well as the seventh (facial nerve). I didn't have tinnitus but I did have extreme vertigo once  - both are linked with  cranial nerve 8. Tinnitus would occur because of swelling of the auditory part of nerve 8 and vertigo would occur because of swelling of the vestibular part.

The tinnitus may well get better as the swelling of the nerves go down, as it did in this case https://www.ncbi.nlm.nih.gov/pubmed/18443402 I have never suffered from vertigo since recovering from the Bell's palsy, so that is the only hope I can give you.

Your age is very much in your favour for a good recovery. Do hope all is well very soon!



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Kcaruso21
Newbie
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Posts: 3


« Reply #2 on: 16 January, 2018, 04:07:30 am »

Thank you so much for you response. I really appreciate you taking the time to write to me. I am in week 3 since the onset of facial paralysis, and the tinnitus has reduced to about half. This gives me hope that I will continue to improve with time! Grateful for the progression Iíve seen so far. Although the facial paralysis is exactly the same as day one, I believe in time things will get better. Thank you again!
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Beefgerky18
Newbie
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Posts: 6


« Reply #3 on: 11 February, 2018, 07:07:45 pm »

It is has been a few weeks so I hope you're beginning to see some improvement but if not, don't lose hope. As someone who suffered a full paralysis with unbearable tinnitus (I didn't work for a month because I couldn't sleep) let me tell you that it will get better. I'm 10 months removed from my onset and I'm still noticing small improvements. After 3 months no one could even tell I had BP. Hang in there and continue to remind yourself that small improvements are a great sign.
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Kcaruso21
Newbie
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Posts: 3


« Reply #4 on: 12 February, 2018, 04:36:55 am »

Thank you for your response. I am seeing improvements in my facial symmetry.. it is much better but not 100 percent back to normal. Ears are still ringing away, but it is improved about 60% so I am hopeful that it will continue to lessen. Did your ears ever stop ringing completely? Iím happy for you that you have had significant improvements. Thanks for the message
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Beefgerky18
Newbie
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Posts: 6


« Reply #5 on: 13 February, 2018, 03:19:30 am »

To answer your question; Maybe? I think that even before BP I had some mild tinnitus.  I still notice the ringing in a silent room or if I cover my ear but id say that the ringing is only 10% of what it was at its worst and only noticeable if I'm thinking about it.
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lucylee123
Newbie
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Posts: 4


« Reply #6 on: 02 March, 2018, 12:04:24 am »

A little different, but I had a clogged feeling / lack of hearing in my ear.  My ear was the first symptom to come and the last symptom to go away.  It took about a month longer than everything else in my face, but it did eventually get better. So hang in there!
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Jagd
Newbie
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Posts: 2


« Reply #7 on: 09 March, 2018, 02:46:17 am »

A little different, but I had a clogged feeling / lack of hearing in my ear.  My ear was the first symptom to come and the last symptom to go away.  It took about a month longer than everything else in my face, but it did eventually get better. So hang in there!
Thank you for your response. I am seeing improvements in my facial symmetry.. it is much better but not 100 percent back to normal. Ears are still ringing away, but it is improved about 60% so I am hopeful that it will continue to lessen. Did your ears ever stop ringing completely? I’m happy for you that you have had significant improvements. Thanks for the message

Seeing these two comments has just flooded me with so much relief I think. I noticed a clogged ear feeling on Feb23rd and figured I was just getting sick. Then on the evening of Feb27th I had some slight numbness/paralysis but it didn't seem bad. (I should've went to the ER, I know)

Then on the morning of March 1st I pretty much severe reduced movement and a reduced sensation on the left side of my face. Luckily I was able to see my doctor very quickly and they immediately started me on a higher dose of Prednisone.

Now a week later and most of the facial paralysis is lessening but my certain areas are still slightly weak. I'm happy with that. It's the tinnitus ringing in my ears that killing me.

I've known I always had tinnitus. It was just never really loud enough to be an issue outside of a silent room. Even going to sleep at night really wasn't an issue. But now it's so loud.

My increase in tinnitus didn't start right away either, it was a few days after the 1st. My clogged ear/sensitivity to sound is still bad but slowly improving too.

At this point, I'm not even sure where I'm going with this post...but thanks guys, you give me hope that maybe it'll go away soon. This got kinda long winded. But again, thanks.
« Last Edit: 09 March, 2018, 02:48:22 am by Jagd » Logged
calclance
Newbie
*
Posts: 3


« Reply #8 on: 21 March, 2018, 10:43:50 pm »

A little different, but I had a clogged feeling / lack of hearing in my ear.  My ear was the first symptom to come and the last symptom to go away.  It took about a month longer than everything else in my face, but it did eventually get better. So hang in there!
Thank you for your response. I am seeing improvements in my facial symmetry.. it is much better but not 100 percent back to normal. Ears are still ringing away, but it is improved about 60% so I am hopeful that it will continue to lessen. Did your ears ever stop ringing completely? Iím happy for you that you have had significant improvements. Thanks for the message

Seeing these two comments has just flooded me with so much relief I think. I noticed a clogged ear feeling on Feb23rd and figured I was just getting sick. Then on the evening of Feb27th I had some slight numbness/paralysis but it didn't seem bad. (I should've went to the ER, I know)

Then on the morning of March 1st I pretty much severe reduced movement and a reduced sensation on the left side of my face. Luckily I was able to see my doctor very quickly and they immediately started me on a higher dose of Prednisone.

Now a week later and most of the facial paralysis is lessening but my certain areas are still slightly weak. I'm happy with that. It's the tinnitus ringing in my ears that killing me.

I've known I always had tinnitus. It was just never really loud enough to be an issue outside of a silent room. Even going to sleep at night really wasn't an issue. But now it's so loud.

My increase in tinnitus didn't start right away either, it was a few days after the 1st. My clogged ear/sensitivity to sound is still bad but slowly improving too.

At this point, I'm not even sure where I'm going with this post...but thanks guys, you give me hope that maybe it'll go away soon. This got kinda long winded. But again, thanks.

I was Diagnosed on the 18th My BP also started with a sort of "plugged ear" feeling prior to seeing the facial paralysis. I hope you guys are all in full recovery mode. I think I'm still acquiring symptoms as my tough became sort of numb today. But I started steroids on the 18th and have 3 more days to go I hope they are enough to kick me into recovery mode. GOOD LUCK ALL!
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