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18 July, 2018, 03:47:34 am
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WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


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| | |-+  Eye patch during the day as well - Is that ok?
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Author Topic: Eye patch during the day as well - Is that ok?  (Read 671 times)
Maria1965
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Posts: 13


« on: 05 April, 2018, 10:57:02 am »

Hello  Smiley

My BP started on 5 March, so exactly one month ago. I am aged 52 and I live in the Netherlands. I am very happy that I found this forum: it gave me hope to read other people's stories and also because it seems that many doctors are not very familiar with BP. I have started acupuncture during the second week and I took Prednisolon during the first 10 days. So far I haven't seen any progress in the affected face muscles but I don't need to use a straw for drinking any longer and eating/speaking also has improved a little.

My greatest concern is my affected eye! I have to wear an eye patch (plaster) during the day as well because otherwise it get's immediately dry and irritated no matter how much eye drops or cream I use. My GP and the neurologist reassured me that it is no problem to use an eye patch during the day. But most people with BP seem to manage without eye plaster during the day? I will also ask my GP if I can see an eye specialist.

I would very much like to be in touch with other people who are currently suffering from BP or have suffered from BP in the past and any advise from you regarding my eye is more then welcome! 
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Kato
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Posts: 20


« Reply #1 on: 10 April, 2018, 07:10:50 am »

Hi there, I am on day 12 of my Bells Palsy. I am 53 and live in North Yorkshire. I saw an eye DR yesterday who recommended I wear an eye protector covered in cling film and sealed completely around my eye with eye ointment in all day and all night. It looks terrible but feels great!
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Maria1965
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Posts: 13


« Reply #2 on: 12 April, 2018, 11:27:51 am »

Hello Kato,

That must be really very comforting for your eye! I will see an eye specialist next week and I will mention the sealed eye protector to him/her... until then I will continue wearing the eye patch and the eye cream during the day. There are moments during the day that I can do without an eye patch but only for 1 - 2 hours.
How is it going for you after 2 weeks? I think that I saw in your other post that you planned to do a triathlon next month? With some luck you might be recovered by then.
For me its week 6 now and there is still no movement in the affected side. The neurologist arranged an appointment with a speech therapist for me and I went there yesterday. She recommended some very mild massages for the face (both sides) and some exercises to relax the eye. As soon as there (hopefully) will be some movement at the mouth, she will give me some exercises for that as well. She also told me that the neurologist has described my BP as a severe case and they are not very optimistic about a full recovery because there was not any sign of movement in the first weeks. It didn't make me feel any better to hear that but from the information on this site I know that there are cases who take longer to recover.
Sorry for my long story, it just feels so good to chat with someone who experiences the same! I feel like I am the only one who has ever had BP in the town were I live...
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Kato
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Posts: 20


« Reply #3 on: 15 April, 2018, 05:46:47 pm »

Iím sorry to hear that you have had no improvements ,neither have I and I am now into my third week ,however I feel that a positive mental attitude is helping and Iím really trying to get back training again with the Eye moisture chamber as recommended by my eye specialist. I have also found that you can buy some special glasses with moisture chamber lenses so that they will protect you against the wind and generally make you feel more comfortable .I keep getting highs and lows with this horrible condition and Iím getting used to the idea  that recovery is going to be a long haul ,itís horrible looking weird not been able to eat and drink and talk properly when you go out .Iím taking little videos every day to see if I can monitor slightest improvement but so far nothing looks any different or feels any different and to be honest Iím a bit sick of people telling me that I look so much better when itís absolute rubbish !theres been absolutely no change whatsoever ,I think people are just trying to make me feel better by saying that. they donít realise that itís actually quite annoying Iím going to  to try and give myself a week off work this week to just continue resting and getting my head around whatís happening even though I actually feel quite alright in myself . The behind the ear pain and jaw pain, come and go ,and Iím not feeling any sensation at all to give me a clue that things may be fixing .anyway another long story, hope you are beginning to improve ,keep in touch, Katey
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Maria1965
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Posts: 13


« Reply #4 on: 16 April, 2018, 01:00:41 pm »

It is the same for me with the highs and lows with this condition and I am also trying to accept that recovery will take a while. We just need to be very patient  Undecided

I feel horrible as well when I go out but I force myself to go out every day for some shopping or a walk. I wear my eye patch and with my sunglasses I think that I might look nearly normal  Cool ... As long as I don't speak and certainly don't laugh of course! The glasses with moisture chamber lenses that you mention sound really good, I will have a look if I can find them on the internet.

There is still no sign of improvement for me after 7 weeks... Apart from a tiny eyebrow movement (hardly visible) and sometimes the sensation of cramp around the mouth. But nothing visible in the mirror. I stopped looking in the mirror too often during the day (I couldn't stop doing so the first weeks).
I don't sleep very well at night and that is worrying me because resting is so important for the recovery. I've bought a natural tranquillizer today (I am not sure if you call it like this in English, it is made from herbs) and I will start yoga classes as well this week.

Are you managing okay at work with your eye? I've not been working since the start of this, luckily my employer is very understanding but sometimes I think that the diversion of work would do me good.

I hope for you that your week off work and the resting will do you good and that you will see some recovery soon Katey! And yes: stay in touch  Smiley
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Kato
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Posts: 20


« Reply #5 on: 16 April, 2018, 07:54:35 pm »

Hi,
I have been signed off work for two weeks by the urgent eye care dr. I had a very thorough examination today and so far my BP eye is coping well. I have been told to avoid Swimming completely to avoid infection but apart from that to carry on with my other activity as long as I keep my eye sealed up. I am feeling more optimistic about returning to normal but itís awful to think it will probably take a long time to get better. My husband is being brilliant and helping me out with chores, I have two ponies to look after and an elderly mother who lives 50 miles away! I find one eyed driving very stressful and makes my good eye sore. I hope you have a good support system? I am hoping my glasses arrive tomorrow I will let you know how they perform! In the meantime keep your chin up and stay positive. Try lavender oil on your pillow too, I find it is very relaxing and offsets the ear and jaw ache too. K
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Maria1965
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Posts: 13


« Reply #6 on: 19 April, 2018, 05:01:04 pm »


Hi Kato,
I am really glad for you that your BP eye is doing well. I will see an eye specialist next Tuesday, I hope they will give me some good advise in how to best take care of the eye. And of course to know that the eye is doing well so far.

It's true that knowing that it will probably take a long time to heal as well as that a complete recovery cannot be guaranteed makes it hard to cope with BP... It's important to stay positive!

For me driving is ok for short distances but I don't dare to take the highway with only one eye! My good eye is also sore at the end of the day... I also feel much more tired in the evenings then I used to be.

And yes, luckily my husband is very supportive as well. I've made the right choice 23 years ago  Smiley

Yesterday I had an MRI done and will have the results on Monday. Take good care of yourself and keep me informed about the glasses!
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Kato
Newbie
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Posts: 20


« Reply #7 on: 19 April, 2018, 09:16:18 pm »

Hi there, 21 days in and no signs of improvement! Iím up and down with it...the sun shone yesterday and today which really helped but my good side is sore, face ache and eye a bit strained. I went for a 25 mile bike ride yesterday ( eye sealed up) which was probably a bit too much! Have had a fairly quiet day today. Just jogged a couple of miles with my daughter. I got my glasses but they donít offer a good enough seal to be really comfortable but are better than my normal sunglasses, the really good ones have sold out, I find my Old ski goggles are the best but Iím getting some funny looks! I look like an old  teenager! Hope your eye appointment goes well, have you got any movement back yet? K
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Kato
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Posts: 20


« Reply #8 on: 17 May, 2018, 07:02:14 am »

Hi there
Just wondered if you are any better?
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Maria1965
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Posts: 13


« Reply #9 on: 17 May, 2018, 10:23:49 am »

Hi Kato, thanks for asking!  Smiley
I am in for 9 weeks now and the only parts of the effected side that have been improving slowly is the eyebrow and foreheadÖ I think it also depends of the amount of rest that you get, I didnít sleep well this night and this morning my face looked a little bit less symmetric. I have also lost 10 kilos since the BP started and that makes me look tired as well I guess. I am not sure if the loss of weight is related to the fact that eating is still not as easy as it was before (it takes me a lot more time to finish a plate!) or if itís related to stress.

I am also still dealing with the small benign tumor that was discovered during the MRI and Iíve asked for a second opinion in a hospital thatís more familiar with BP. They have a Facialis team and I am keen to know if they will give the advice of radiation or that it would be better to follow the tumor by performing regular MRIs. The appointment is for next month, 27 June.

They are also specialized in plastic surgery for facial paralysis in this hospital. I read that you attended a meeting where they talked about this as well? There seem to be quite some solutions to make the face look more symmetric and for the eye to close (by putting a small weight in the eyelid) although dynamic operations seem to be quite complicated (muscle transplantations).

Itís good to know that there is still hope if there will be no or only few recovery. But of course, we are still hoping for that. I read in your other post that you have seen some recovery and I am really very happy for you!

Iíve started to work from home a few hours during the week as well and I am happy to have some more structure in my everyday life nowÖ

How are you coping with your eye these days? Do you still wear the sealed eye protector? I have noticed recently that by putting a small plaster just underneath the eye, it lifts the eye a little and this is quite comfortable and allows me to have the eye open most of the time during the day at home. Itís so much less tiring then having the eye completely covered all the time. If I go outside I still cover the eye with a plaster and my sunglasses so that itís protected in the best way (I hope)


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