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18 July, 2018, 01:42:17 am
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WELCOME TO THE ONLINE FORUMS FOR THE BELL'S PALSY ASSOCIATION | Charity Reg. 1094039


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| |-+  GENERAL DISCUSSION - Open To All
| | |-+  1 month anniversary/still wonky
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Author Topic: 1 month anniversary/still wonky  (Read 395 times)
Kato
Newbie
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Posts: 20


« on: 26 April, 2018, 06:33:21 am »

Iím a month into my Bells Experience, I have had no physical improvement at all. I have been off work due to the inconvenience of my job ( in a small wood handing workshop) and I am very fed up and actually now starting to worry that there might be something else underlying thatís causing the problem . I will make another GP appointment today. I wonder if my age of 53 is slowing healing? Just want to blink so I can swim again and smile properly. Lots of love to all of you sufferers out there. K
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Biki
Newbie
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Posts: 2


« Reply #1 on: 26 April, 2018, 08:39:03 am »

Have you tried steroids ( orednizone or urbazone) or physical therapy? My doctor told me at the beginning if there i no improvement after one month, MRI and the nerves must be tested and,  I do not know in English how that procedure is called.
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seanyirl
Newbie
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Posts: 20


« Reply #2 on: 27 April, 2018, 12:18:12 am »

Iím a month into my Bells Experience, I have had no physical improvement at all. I have been off work due to the inconvenience of my job ( in a small wood handing workshop) and I am very fed up and actually now starting to worry that there might be something else underlying thatís causing the problem . I will make another GP appointment today. I wonder if my age of 53 is slowing healing? Just want to blink so I can swim again and smile properly. Lots of love to all of you sufferers out there. K

Hi , I got Bells in 2016.
Look at my previous posts, The healing process can be really slow!
The best advice is not to worry , easier said than done as I've been there, it was almost two months before I got any movement  and at that it was a twinge , sort of skin crawling sensation. The nerve healing is a slow process but with me it was like nothing then every week I notice new sensations, I am about 98 % healed but i still feel the nerve repairing even still the problem is and was is we are so desperate for some sign of healing we look every chance we get to see improvement. its gradual but will come, try relaxation techniques and try to take your mind off it with watching a movie or something you enjoy with friends or loved ones, as the mind and worry can exacerbate symptoms , one month is nothing and I,m sure you will be coming back on here  in a year or so saying the same thing to someone else , the people on here are so helpful.
people who have been through this condition no more than the specialists! mine gave me bad advice but luckily I found this forum and appreciate the help I received.
best of luck and I wish you and all a speedy recovery as possible!
« Last Edit: 27 April, 2018, 12:21:04 am by seanyirl » Logged
Kato
Newbie
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Posts: 20


« Reply #3 on: 27 April, 2018, 09:27:55 pm »

Thanks for kind and helpful replies, it is good to have the connections with other sufferers. Today I had an Amatsu treatment which has totally wiped me out! I will be interested to see if any changes occur...
I usually have this therapy once every six to eight weeks to help fix my shoulder. My therapist noticed all sorts of unusual differences and worked to target BP . I donít want to take any more steroids if at all possible. K
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DemiG
Newbie
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Posts: 15


« Reply #4 on: 16 May, 2018, 05:26:28 am »

how are things progressing for you.?
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Kato
Newbie
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Posts: 20


« Reply #5 on: 16 May, 2018, 07:09:24 am »

Hi there thank you for asking how Iím getting on,
Itís almost 7 weeks now and I am experiencing a few weird sensations ,my  eyebrow sometimes raises and stays put for about 10 seconds and then returns to where it was, similarly my left upper lip curls itself into an Elvis like expression all on its own and then also returns to where it was ,  my chin is starting to do the same so hopefully All of the strange things point to the nerve healing.  My eye seems to be closing better at night  but is no closer to being able to link properly.  I attended a meeting in Newcastle of the facial palsy UK support group which was really interesting ..there was it talk about possible surgeries if there is no recovery ,this was given by one of the facials Surgeons, and there was also a fantastic physio therapist who gave some really good advice and tips on management I strongly suggest to anyone to try and find one of these groups to connect with. I am feeling a bit better in myself but there is no doubt that this illness has reduced my self-confidence and I am definitely more fatigued than I have been for ages.  I am back to work on reduced time and I have started to do exercise again although this is really difficult with the eye not closing I have learnt to swim with my head well out of the lake wearing some very large mirrored goggles !! Hope everyone reading this is making a recovery to weíll have to  be strong and try and have a sense of Humour!
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DemiG
Newbie
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Posts: 15


« Reply #6 on: 17 May, 2018, 01:10:38 am »

I can't exercise like I use to either. I need both eyes to function!!!  My self esteem too rapidly sunk into a hole but is starting to climb out.  Today is officially 7 weeks for me. My forehead is almost normal (almost) but my lip won't curl and therefore a wide smile is hideous  but I did have a very strange tugging around my mouth this morning.  However, this awful piece of skin hanging under my eye has almost bounced back up. 

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Maria1965
Newbie
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Posts: 13


« Reply #7 on: 31 May, 2018, 06:35:25 am »

Hi Kato, how are you doing? Are things still progressing for you? 
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Bernadette
Forum God
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Posts: 589


« Reply #8 on: 01 June, 2018, 07:03:30 am »

Hi Maria,

How are you? Any progress at all?

Do hope you have seen a little improvement.
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Kato
Newbie
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Posts: 20


« Reply #9 on: 03 June, 2018, 09:46:03 am »

Iím still paralysed and unable to blink. My eye will stay semi closed at night so I can sleep without a patch but I have to reapply ointment half way through which I do when my visit the bathroom! I have a few odd twinges in my forehead, chin and upper lip but no sign of any ability to move my face on its own, maybe slightly at my forehead. We have just been away camping for a week at the Hay Festival in Wales,  it was challenging trying to keep clean and lubed without my home comforts. I have developed stye infection in my Bells upper eyelid which is itchy and sore.
Im back to work 22 1/2 hours next week and just trying to live normally now  and hoping I will make a full recovery in due course! I am emotionally fragile and a little depressed but fighting!
How are you doing?
Best wishes K
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Maria1965
Newbie
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Posts: 13


« Reply #10 on: 04 June, 2018, 10:53:06 am »

Hi Kato, it's the same over here.... I am in for 3 months now and the only improvements for me are the forehead and eyebrow but nothing close to a wink yet and still no movement for the mouth. I am back to work for 10 hours a week (computer work from home) and that's just enough for the moment!

It must be comfortable for you that you can sleep without a patch now  Smiley  How is your eye doing during the day, do you still use the sealed eye protector? I discovered a few weeks ago that by putting a very small patch just underneath my eye during the day, it lifts the eye a little which (as well as ointment 3 or 4  times a day) helps my eye from getting irritated. You can hardly see the patch when I wear my glasses and it makes me feel a little better, although the ointment makes the view blurred it's much more comfortable then a patch that completely covers the eye.

We are going on holiday to France next week and I am looking forward to it but it also scares me a little because of this condition. I feel exactly like you say: a little depressed and emotionally fragile but also fighting to live as normally as possible right now.

I hope we will both see some improvement soon.
Take care.

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Kato
Newbie
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Posts: 20


« Reply #11 on: 10 June, 2018, 08:20:39 pm »

Have a great holiday!
Hopefully some rest and relaxation and sunshine will work wonders!
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